March 8, 2022

There. I said it. I’m letting my hair down today. And I want to make everyone aware of it during this “March is MS Awareness Month”.

This post is easy to write, because I’m having a bad day.

Whether a diagnosed case of MS is mild, moderate, or advanced, living with it over time is

• Baffling: by what is causing what; how long something will last; how bad will it                      get…
• Interfering: with things I try to do, say, feel, think, see…
• Thieving: of my job/finances, my time, my libido, self-esteem, dignity, abilities…
• Controlling: of my decisions, my activities, my social life, my emotions
• Humiliating: as I stumble, sway, lose control of my bladder/bowels, get                                        confused…

While there still is not a cure, I’m still hanging onto hope. Tomorrow is another day. Another chance that it will be an easier day.

P.S. I’m wearing my orange ribbon next to the blue/yellow ribbon (for Ukraine). It raises awareness, and questions.

Debbie Petrina
Author of Managing MS
Community Advocate for MultipleSclerosis.net 
www.DebbieMS.com

This entry was posted in Awareness, Education, Multiple Sclerosis and tagged March MS Awareness Month, MS communication, MS Education, Multiple Sclerosis Awareness, Understanding Multiple Sclerosis by debbie34_wp. Bookmark the permalink.