MS and Walking Problems

“Falling Down”

May 7, 2012

Most people with MS will fall down.  As careful as you try to be, it happens when
you least expect it.

I fell down two weeks ago and I am still recovering.  As I was getting up from my recliner, my knees suddenly buckled and I landed right on my tailbone.  It was probably a good thing that my back hit the end table as I fell.  I think it helped break the fall of dead weight hitting the floor and possibly preventing a broken bone.

Who knows?  I may have a slight fracture because my butt still hurts when I sit, but it is slowly getting better.  I held off from going to the doctor because the thought of X-rays and who knows what else a hospital would do was not something I wanted to deal with.  I didn’t want the added stress of all that added to the stress of the fall, plus all the germs I would be exposed to at the hospital.

I didn’t know if that was a smart decision at the time, but after the fact, in my own mind it was. The truth is, if I had been in severe pain or exceptionally immobile in a new way, I would have gone for a medical evaluation immediately or a day or two later.

There are so many symptoms of MS that make walking precarious, and it is probable that almost all people with MS have at least one of them.  Fatigue.  Dragging feet.  Weakness. Ataxia.  Toe or foot drop.  Poor coordination and balance.  Spasticity.
Vertigo. Medications, lack of sleep, and age also affect walking safely.

We need those handrails on steps.  We love hanging onto those shopping buggies
in stores.  Thank goodness for all those walls and furniture to hold onto.

With my own case of MS, I had walking problems from the onset.  I was very young and the walls and buggies sufficed for a few years.  Then things started getting worse. I bought a collapsible cane and carried it in my briefcase everyday, but never used
it.  Until one day when I was crossing a cobblestone street and I wiped out.

That’s the day I took out the cane—I was thirty-years old and started using it for my poor balance. I was too startled and scared to be embarrassed.  After that day, I never hesitated to use that or any other assistive device.  It didn’t take much to fall down:  a crack in a sidewalk, a toe getting caught in a throw rug, or a shoe heel that was too
high.

I thought of my cane as a pair of glasses that one uses to see better.  So I bought four canes in various colors and styles to match my outfits. Later, the walker-on-wheels with the built-in seat to rest on was a blessing when the weakness and fatigue would cause my legs to crumple after walking a short distance.  The added benefit of the basket to carry my things for me was so convenient.

We MSers need to think about tripping and falling constantly—something “normal” people take for granted.

Falling down is dangerous to us for several reasons.  Obviously, serious injuries can result.  Serious injuries not only impair daily living, they cause enormous stress and often cause a relapse.  Relapses lead to intensifying existing MS and creating new ones from residual damage. Injuries take longer for people with MS to heal because of the autoimmune response of our nervous system.

Steroids (such as Solu-medrol) are frequently prescribed to reduce inflammation and shorten the life of a relapse.  Most people on steroids suffer side effects and over time these cause loss of bone density.

Therefore, the older you are, the more dangerous it is to fall down. Not only are older people prone to fractures because of bone loss from things like menopause and osteoporosis, but those who lived a long life with MS probably used steroids frequently throughout the years to shorten their relapses.  Being fifty-seven years old, I was lucky I didn’t break a bone when I fell.

There is a whole arsenal of tools available to help prevent falling down–physical therapy, walking devices, strengthening/balance exercises, arranging daily habits to enable frequent resting…too many to talk about in this article. I’ve explored and use(d) so many of them and am always looking for new things out there to try.

Where to start?  Go to a physical therapist who has worked with MS patients and talk to other MSers. It is essential to learn how to do and use things correctly.

These things take time, dedication and will power to adjust to lifestyle changes.  They create more interference in our daily life and add more to do and worry about.  But the chance of suffering a serious injury doesn’t fit in with working full-time, being a spouse/parent, running a household or enjoying life either (sigh).

We with MS have to take every precaution we can from falling down.  Our lives (and our butts!) depend on it.

www.DebbieMS.com

 

 

 

 

Do Weather Changes Affect MS?

“The Rain is Coming”

January 22, 2012

I’m a walking barometer. I don’t have to listen to a weather report to know that a change in weather is coming. I can feel it.

My spasticity starts to worsen; my hands, legs and back begin to feel tight. I get tingling sensations and start to drop things. My coordination and balance problems go haywire. And then sure enough within a day or so, it starts to rain.

I hate it when it rains—or when it snowed when I lived in Pittsburgh. Those low pressure systems are killers for me. And when they linger on for one day, two days or more, I become more miserable. My one ‘bad day’ turns into two ‘bad days’ or more. My MS symptoms intensify, especially the spasticity and pain. And the longer it rains, the worse it gets.

I become unmotivated, lethargic and moody. My husband remarks that my moods change like the weather. I say, “yep, you’re right on that one!” No argument there. But, look out everybody if you are a female and have PMS at the same time…

I don’t have an explanation for why this is. I never researched it. I’ve talked with so many people with MS that this happens to; it isn’t a figment of our imagination.

When I moved to the desert from Pittsburgh, there was no question in my mind that a dry climate with limited days of rain helped relieve so much of my pain and stiffness. Pittsburgh is a soggy, rainy city almost like Seattle. People with rheumatoid arthritis move to the desert for this reason, too. My aunt has rheumatoid arthritis and she moved here over thirty years ago for this reason.

I was talking to a neighbor one day after a horrific thunderstorm passed through our valley. This good-hearted neighbor has four kids with severe brain damage. One child is biologically his, two are adopted, and one is a foster child. He told me the day before a thunderstorm hits, all the kids have seizures. I find that astonishing. There must be a neurological explanation to why this happens to us. I’m going to have to look into this.

I wonder what people with nervous system disorders living in the Amazon do. Maybe there aren’t a lot them in this situation; MS is rare down there nearer the equator.
People with arthritis say the same thing when it rains. They feel stiffer and experience more pain. My friends with arthritis who visit their relatives in wet or humid climates are happy to come home to the Valley of the Sun.

I try to keep up with exercise and deep breathing to relieve as much of stiffness and pain as I can during a rainy spell. Sometimes it works, sometimes it doesn’t. Complaining about it to others in our situation doesn’t solve the physical effects, but it does help the mood. There are sure a lot of us out there in the same boat. As they say, misery loves company. Sometimes I just throw in the towel and crawl in bed with a glass of wine and a good book.

The wind has just picked up and the rain is coming. My fingers keep missing the keys as I am writing this and I am becoming very frustrated. I think I’ll just throw in the towel and get that glass of wine. Eventually, the sun will come out again.

www.DebbieMS.com